Neurofibromatosis Online Information Library Project
I have three main reasons for Creating The Neurofibromatosis Online Library
- 1. Because Neurofibromatosis is unknown by the majority of primary care doctors it is very important for a Neurofibromatosis sufferer to have access to as much information as one can get a hold of. I have found approximately 10 sites that have outstanding updated documentation and sources on Neurofibromatosis. The problem is these 10 websites have several pages of said documentation and sources. Thus, it can be difficult to obtain precisely what you need. My hope is that in gathering all the sources these websites have to offer and putting them in one place it will be easier to determine what you require.
- 2. As a primary care doctor, or general practitioner, who takes charge of a patient with Neurofibromatosis it can be difficult to know what to do for your patient. If your patient suffers severe symptoms, studying Neurofibromatosis is very significant. But it is time consuming to research and determine the information pertaining to your patient and it is vital to ascertain the right research and documentation which will help you to care for your patient. I trust that the Neurofibromatosis Library will provide an uncomplicated one-stop researching site.
- 3. As a parent or caregiver of a child or baby diagnosed with Neurofibromatosis It is important for one to have as much information as you can find to provide special care. My hope is that it will be easy to proceed to my library find the documentation or source you need and give your little one that special care
*Please Note this Online Library will start out with Research,Documents,and Resources on Neurofibromatosis Type 1 because that is what I (Ariela) suffer from. However, once I am done with the NF-1 stuff I intend to have Research,Documents,and Resources on Neurofibromatosis Type 2 And Schwannomatosis. This project is to promote Neurofibromatosis Awareness which includes all types of NF! If anyone with NF-2 or Schwannomatosis wants to help me with building this Library please contact me.